Day 15 - Sept. 17
Wow the time is flying by - after Alex does his therapies - it’s lunch time and then just resting and waiting for the stem cell treatment. We are a lot earlier today and get in at 3:25 and out at 3:55 so that mean I will get to bed earlier. He comes out and says it was okay and is doing fine.
This time he does not lay on his back the whole time but moves from side to side. I get to go to bed at 10 p.m. After getting heck from the Drs. for overduing it he has finally realized and will be resting until his next stem cell treatment which is on Friday.
September 19th, 2007
Day 14 -Sept. 16th
We went with another couple sunday brunch at the New Centry Hotel - a 5 RMB ride by taxie. It is a beautiful hotel - besides chinese food they served american style food which was a nice change for us.
We came home and Alex rested for the rest of the day as he realizes now he did to much. because on Sat. the therapist said what have you done to yourself. Some things were worse and some were better.
September 19th, 2007
Day 12 -Sept. 14th
As this is a free day Alex wanted to go see West Lake - Mr. Lee our taxie driver dropped us off there at 12:45 and said he would return at 2:30 and take us to the open air market. I thought doing both in one day would be to much but Alex was feeling so good after his stem cell treatment. It was amazing we walked all around West Lake with only small rests. Then Mr. Lee arrived and took us to the market and said he would return at 4:30. So more walking and a small rest. Most of the time he did not even hold my hand. He was walking so good, I guess that is why he just kept on. It was amazing to see him.
September 19th, 2007
Day 11 - Sept. 13th
First thing this morning I got a chunk of a large pill along with a piece of apple stuck in my throat - at first I could barely breath and after choking it got a little better - Alex called in the nurse who brought in a dr. They said I had to go down to emergency to see a Dr. - I didn’t want to go but they said they had to look after me. Jonny a volunteer who speaks english and the Alex’s nurse took me down to the main fl where we went to an office of a ear/nose/throat dr who examined me and said I would be okay just to drink lots and lots of water and it would dissolve. So that’s what I did and now I’m fine.
I went to the market and when I came back Alex had a headache and a temperature and the nurse and Jerry the volunteer were in checking on him. They left & came back with the Dr. who told him to drink lots of water. Then when we were eating our supper the Nurse & Dr. came in to see how he was - he said he was on call and he was to call him if he felt ill and he would come see him immediately. They sre take care of you here - it makes you feel better just to see how concernd they are about you. His temperature was only 3.7 but I guess that was high to them.
September 19th, 2007
Day 10 - Sept. 12th
Alex did all his therapies this morning. Now comes lunch and the waiting begins for the injection.
I went down to the market and when I returned Alex was hooked up to the IV ready to go so I just made it back in time. He is going a little earlier today. Went down at 3:45 but had to wait outside the stem cell room until 4:00. Then he was out at 4:30 saying again it was a piece of cake. He lay on his bed for f5 and 1/2 hrs without moving and he turned on his side for 1/2 hr. This was not a good thing to do as the next day he was in pain with very sore muscles. So next time he will not do that. I hope!
September 19th, 2007
Day 7 & 8 - Sept. 9th & 10th
We have another free day and Alex wants to get outside. We go for a walk and end up walking for 45 mins. At home he can only walk for 30 min. - anymore and he is falling down soI guess he felt so great that he could walk so well we just kept on. It was a very hot day -probably 87 or 88.
On the 10th Alex goes to therapy and he is right back where he started - some things were worse and some were better. In the afternoon we walked down to the market and back and I felt that was even to much for him. He seemed a little wobbly.
Another good thing happened - Alex told the therapist how his head feels - like someone has hit him over the head with a hammer and he feels all foggy. Also when he turns is head to the side he has to squint one eye and he sees double. She told the acupunturist and he checked him out and then put a lot of needles in his forhead and around his head. The most amazing thing happened - while eating supper he turned to look out the window and he didn’t have to squint and he didn’t see double. It was an amazing break through. I sure hope it lasts.
September 18th, 2007
Day 6 - Sept. 8
Alex’s walking is a lot better. The Dr. thought his speach should be better then it was - apparently that is the sign of improvement. Today is our free da no exercises so we are taking it easy.
September 18th, 2007
Day 5 - Sept. 7th
Alex spent most of the day doing his acupuncture, physio and electric wave therapy.
We had a lot of excitement as ABC was here filming a man named Paul who lives in Colorado. He also has ataxia so we will be looking forward to seeing this interview on TV. They were not sure of when it would be aired. Jon from Beike was also here for the taping and I had a long conversation with him about stem cells. He told me Alex should see a lot of improvement after he has his injections. Alex also spent a long time talking to the Dr. that is in charge of the stem cell program.
Alex was wheeled into the stem cell room at 4:40 p.m. and came back out at 5:50. He said it was a piece of cake and felt really good. He had no problem laying still for 6 hours without a pillow. He is a very good patient. Whatever they gave him made him doze on and off for the next 6 hrs. It was harder on me watching him for the first time to make sure he did not lift his head up.
September 18th, 2007
Today Alex had an xray of his spine - I guess that is so they can see where to put the stem cells. We walked to the market in the morning and had a good look around.
In the afternoon Alex had is procedures and he told the acupunturist about how foggy his head feels and that when he turns his head to the side he has double vision. When we were having supper he notice he could turn his head to the side and his double vision was gone. In Canada we were told there was nothing you can do for this disease - no medicine - no surgery - just go home and come back in 6 months.
September 18th, 2007
Today he had acupuncture, physio, and electric wave - so that pretty well takes up the day. We also walked down to the market to get some food.
September 18th, 2007
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