Hi Everyone,
Kendra is doing great! So many people can get over the change in her. She is so much brighter and smiling more. Friday she had an exceptional day! She was kicking her legs so hard she rolled on her belly and of course now her face in down into the blanket lol. Kendra finally got her face turned to the side.
We also went to see Dr. Nemeh who is a faith healer in OH it was amazing the change in her back was incredible. It was a wonderful experience.
I finally got the tubes put back in Kendra ears. She did wonderful with the surgery. I have been trying for a long time but the doctors did not want to operate because of the seizures. The doctor I found said the gas to put gas to sleep was actually used as a way to stop bad seizure and he couldn’t understand why no one would put her to sleep. So this will be great to get her the oxygen again to help the stem cells.
I also am getting the e-stim machine to use at home. Kendra’s doctor is doing some research on the machine before he gives me the scrip so I hope I get that soon to get started.
Friday 11-2 was Kendra’s birthday she had a wonderful time in school they had princess day for her painted her nails, had cup cakes the whole nine yards.
Saturday was her party, we made the living room into a big castle and there were so many people here. She had a wonderful time I could tell. She was really tired afterwards so Daddy rocked her to sleep. Of course mom was sleeping before her haha.
I will try to keep more of an update it very hard with all the therapies I have going for Kendra but I want to help her all I can.
I will let you know how the oxygen goes and the e-stim.
Yes we are planning another trip back to China, I think this is the way to go with the stem cells after all the treatments I have done with Kendra.
Love
Sarah, Darrin and Kendra
November 4th, 2007
I am writing to update Kendra’s blog. Sorry I haven’t been on here for a while we have been doing a tremendous amount of therapies since we came home and things have calmed down a little since Kendra returned to school. Kendra is doing very well since we came home from China. Her muscles are much softer than before the stem cell treatments.
Everyone keeps commenting on how bright Kendra looks. She has been smiling almost everyday and laughing out loud which used to be rare thing to see. She has become very verbal and I am hoping for some different sounds beside the vowel sounds. Kendra used to shut down as soon as we went to some place that was very loud and noisy but she only does that occasionally now which is an improvement. She has been keeping her eyes open and looking around. I like the fact she seems to talk back to people who talk to her, she is making some attempt at communication to answer them.
The seizure activity is back to once every 30 days so no change there but we are still hopefully it will improve also.
I will be able to post more since I have a little more time. Can’t wait for my next trip to China. Thanks everyone.
Love
Sarah Darrin and Kendra
September 5th, 2007
Hi Everyone,
Keeping trying to update Kendra blog more often but it seems like time is tight again. lol.
Kendra is seeing much better I had the vision therapist check her vision and she does agree that Kendra is seeing better too. This is wonderful news.
Kendra muscle tone is also alot better along with the circulation. So I am hoping this progress will continue.
We still can’t seem to get back on track with everyone so I will just add one thing back at a time. I haven’t even sent her to school full time, only a few days a week. School is almost out anyways so I thought I would get a jump on the therapies again while she doesn’t go to school all day.
I am trying to add the picture from China but they don’t seem to be that easy to add I will keep trying.
Thanks for the prays
Love Sarah, Darrin and Kendra (Elmo)
May 28th, 2007
Well it was quite a trip and what an adventure.
Kendra’s hands and feet seems warmer than before and she seems brighter somehow. I am hoping this is the start of something good.
I woke up and I saw Darrin standing over Kendra looking at her. I rolled over to see why he was standing there when a few seconds later Kendra had a big seizure.
When Darrin and I started talking about what happened he said how did you wake up 10 second before Kendra had the seizure and I told him when I saw him standing over Kendra I grew concerned that something was wrong since it was 1 AM in the morning, that’s what woke me up.
Well Darrin looked at me funny and said I wasn’t standing over Kendra I was lying beside you in bed.
So with Darrin long hair and beard from the side who would you guess he looks like?
So I am convinced that Jesus was standing over Kendra who else would it be. Who would be standing over Kendra looking down at her at 1 in the morning in our bedroom.
I am not sure what this connection is all of a sudden with Jesus but I am all ears. I can’t believe some of this stuff is happening to us but it is pretty wild. I don’t have another explaination for any of the stuff that has happened to us and I am not going to try and think of one. I am just accepting this closeness to Jesus and take it for that.
I hope to post the picture soon. We are still pretty tired and I don’t really feel good today (sore throat) yuck.
Love
Sarah, Darrin and Kendra elmo
May 4th, 2007
Well we did finally make it home after a nightmare in NJ our flight was cancelled from Newark, NJ to Pittsburgh on Sunday. It was around 6 pm when we touched down in NJ and of course I had no help again. The airline told me I had to get my luggage and recheck it (hahaha) and just what I needed 5 more bags to carry.
I got my luggage off and of course there are no luggage carts left by this time. I looked at Kendra and said well I guess we need to say a pray because we need a mircle right now. Both of us exhausted of course by this time. I said JC (Jesus Chris of course) we need someone to come by with a luggage cart to help us right now. I was saying this of course out loud while everyone was standing there staring at me like I was crazy. They by the way were waiting for a luggage cart also. 40 seconds later a man from the airport came by and said hey you need help. I was suppose to go outside but something made me come in. Of course people was trying to get the man to help them first and I just stood there. It was the strangest thing and of course all the people are really staring at me now. I looked at Kendra and said see I told you we have someone watching over us this whole trip. It is nice to have God on your side. When I left the people were still in shock wondering who I really was. So with 300 hundred flights cancelled and so many people standing around I guess I did get a mircle now didn’t I.
So the man takes us to the check in gate and of course there are 140 people in front of us. By this time it is 6:30 or so and I thought we will be in this line for 4 more hours. Kendra was totally wiped out along with me. So guess what I did. Said another little pray and the check in guy up front stands up and looks over the croud comes right back to me and Kendra and said come with me hahaha. Those people in line was ready to kill me I think haha. So they checked all my bags, the 5 I picked up (which by the way they weren’t doing for anyone else) got us set up with a hotel and meal tickets and we were on our way to a hotel to get rest and food. With all those people and all those flight cancelled I would say we did get a part the red sea mircle don’t you agree?
When I got home Darrin had the whole house clean, pizza casarole made and of couse the Easter Bunny left two baskets one for Kendra and one for me. With two beautiful cards. What a wonderful man I have so loving, caring and supportive I truely am a lucky women to have such a wonderful person in my life.
I will post more about the trip to the hotel maybe on Friday when I get back from Lancaster.
Say a little pray hey this stuff works haha.
Love
Sarah and Kendra.
April 18th, 2007
Well we finally made it home late Monday flight was cancelled what a mess. Post later when we have more energy. Sorry I can’t call you all back so I am leaving a message so you know we at least made it home safe. thanks.
love
Sarah and Kendra
April 17th, 2007
Well we finished all the therapy so I thought I would hurry and post one last time from China but I will keep Kendra’s Blog updated and add the picture for all of you that supported us in our adventure and what an adventure it was.
I just thought of something I can’t believe I flew half way around the world with Kendra by myself now I am nervous what was I thinking.
Just kidding
I did want to post and thank everyone for supporting us over here it was nice to see all the comments of people thinking of us back home.
The time went pretty fast over here but I can’t wait to get home. Kendra and I are both pretty tired. But we have met some amazing people here from all over the world. The kids I have seen come through here have amazing dedicated parents just trying to make their childs life a little better. Even though we are all hoping for a mircle most of us will be happy with some improvements for our child.
We are all cheering even when someone else child makes an advance in the therapy room. Even if we can’t speak the same language you can tell we are all happy about someone else child making the smallest change. Some things are just universal I guess lol.
I can’t wait to see you Darrin, Kendra and I miss you so much and thank you so much for supporting us we couldn’t do this if it wasn’t for you. I love your comments big kisses to you - me and elmo.
Thanks for the email address Susan. And what do you mean by 20 year history on the weather????????????? that just doesn’t sound good.
Well the next time I post it will be from the good old USA it’s almost 5 Saturday evening and I leave 8:30 tomorrow morning.
New chinese lesson:
Knee how means how are you
way means hello
Hanghzou is really hong joe
she she is thank you
I guess at least I was corrected before I left better than not at all you wonder how people tell you to say hello over here and it not be right lol. Well I guess at least I wasn’t swearing at people I bet that would have made it quite a long trip. lol
The cleaning lady can’t speak a work of english so I helped her to say Kendra, good morning and thank you it was pretty cool today she came in with a note written in english from one of the nurses that said I wish the best for your family and I hope you have a safe trip back home. I thought that was pretty cool.
Well thats all from China thank you all once again she she once again lol
See you on the other side of the world
Love
Sarah and Kendra
I love you Daddy - Elmo
April 14th, 2007
Well only one more day to go tomorrow. Its around 5 pm here and we are getting ready for supper.
I posted yesterday but it doesn’t look like it worked I don’t see the post on the site.
Kendra still seems pretty tired so I hope when we get home we can get rested up some before I have to go to Lancaster.
Thanks for posting about the buck and boost transformer Mikie. I figured by the time I get the machine here and have the US scatch out my eyes for the conversation I would have more in than getting one in the US. I can’t explain 110 v verses 220 v and you want me to go into cycles you have been at Burley’s too long. And I hope the Pompoms and the mini skirt match oh yes and I want picutures lol.
Thank you for the wonderful message Bonnie, Amber and Lauren you should always have even a little hope.
Lauren had a wonderful day in therapy Thursday, every time her mom Bonnie would call her name she would look right at her even when she changed which side of her she was on. We are all very excited over the progress they have only been here a short time with only two stem cells in.
Hey Susan tell everyone hi at school for me and Kendra. I was asking for the web site of where to order the shoe for over the foot braces. You gave me a paper copy that I have at home and Lauren’s mom was looking for shoe so Lauren could go to her sister Amber’s graduation instead of just wearing socks. We can talk about Kendra school schedule when I get home. thanks
One custom here is when you are in the hospital your family cooks and brings all your meals in for you. I thought that would be pretty tough if you were in two weeks and you need breakfast, lunch and dinner and I had to go to Johnstown 3 times a day. I am thinking someone would be pretty hungry lol.
The weather is still pretty nice here, very hot and they are saying summer is coming I think it is about 104 in the summer (no thanks).
I am doing some of the packing today I don’t know when I will fit in the rest but I guess I will have to get to it. I thought I would at least be off Saturday afternoon lol so I guess I will just throw things in where they will fit and sort it out when I get home.
Talk to you all tomorrow
Love
Sarah and Kendra
I love you Daddy see you shortly Elmo
April 13th, 2007
Well we are half way through Wednesday leaving on Sunday so we are almost done. The last stem cell when well, they started at 5 pm so Kendra slept until 7 am the next morning and of course I had to wake her up for therapy lol. I can’t believe she slept all those hours. I rolled her off her back around 12 midnight and she never even woke up.
Seizure activity is down I see a little things here and there but nothing major so thats a plus. I thought maybe it would go back up after the last spinal but nothing ever came about. Kendra is having another good day here Dr. Mike is very happy with her muscle for her arms getting softer and coming down quite a bit but still have work to do on them. I am hoping once we get back in the hot tub it will help them the rest of the way. I really need to find a doctor who will approve the e-stim. I was thinking about the machine itself and I don’t think it will work at home even with the convert. The convert go from 220 to 110 I don’t think they make them the other way. If I can find a doctor back home to write the scrip the insurance should pay for it so I will work on that when I get back home. No word here anyways on the machine and if I do spend the money on it will it work or not would be the big question.
It is pretty exciting over here because the doctors actually like to do things for Kendra not like back home just want me to give up. They all seem excited over every little thing and look to try different things with Kendra. So I am glad I came.
I hope you are planning on getting rid of that snow and cold before I come home, you better hurry up lol.
One of the customs they have over here if one of your family members are in the hospital the family brings them their meals to eat. I thought that would get pretty time consuming three meals a day if you were in two weeks WOW. But you see people coming in with pots and dishes of food on the way to patients rooms.
I have a lot of picture from China so I think I will just post them on the blog when I get home it might be easier for everyone to see them faster than waiting for me to get to your house to visit lol.
I have to leave for Lancaster on Wednesday morning April 18th so I won’t be around too much the week I get back.
HAPPY 70TH BIRTHDAY MOM SEE YOU SOON AT LEAST I GET OUT OF BUYING YOU A PRESENT GOOD EXCUSE RIGHT
Talk to you all later
Love
Sarah and Kendra
I love you Daddy - Elmo
I wanted to thank each and every one of you for all your help with Kendra. The doctors back home tell me to give up and this is the first group of people who actually try to make a difference in Kendra’s life. I am so thankful that I am here and everyone has been so positive for a bright future for Kendra. I cannot say thank you enough for all the support that you have given me and my daughter during our stay here in China.
Thank you so much
Love Sarah and Kendra Reese
April 11th, 2007
Well Kendra is going in between 5 and 6 tonight for her final spinal stem cell. We will finish out the week with therapy starting 8 am Tuesday again right through Saturday. They wanted to do the stem cells at 2:30 and I thought she would sleep until 9 pm or so then be up all night and have to be ready for therapy at 8 am so I told them it would be better if they did the stem cells later in the day so Kendra can sleep all night, she would be more rested. So I was glad they are waiting until later so maybe she won’t get up until 4 or 5 but who knows I might have to wake her at 7 am sleepy head lol.
Kendra and I went to the supermarket today we wanted to be famous people a few more times before we leave lol. The weather is really nice here today around 75 perfect day, I hope you are all enjoying the snow (yuck).
It is funny here all the people that work here kinda have nappy time during working hours. Not sure if its called a lunch time or just sleepy time seems pretty funny. Of course it was like that when I worked at Burleys some of us worked and the rest slept so I guess you have that everywhere you go.
It funny most of the stuff you can buy here is American, hello kitty is very big here, whinney the pooh, mickey mouse, etc so hard to buy anything that looks chinese to bring home doing my best to find stuff but most of it I could get in Walmart back home. Even the toys here Barbie is real big here too so far away but it remains the same lol.
Talk to you all later
Love
Sarah and Kendra
I love you daddy - Elmo
April 9th, 2007
Previous Posts
