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Welcome to China Stem Cell News - 2010 Q1.1 Print E-mail
General
Thursday, 19 November 2009 16:47

StemCellsChina Updates

"We went to walk and she said she was feeling the "flavor" of the sun, and this greatly moved me... today I am here at this hospital, watching some incredible things that only God could explain."

Mother of Giulia Rodrigues da Silva

StemCellsChina works to connect people all over the world with active stem cell therapy centers in China. While still relatively unknown in the West, adult stem cell therapy--autologous and umbilical cord stem cells--have already seen a long history. Hospitals treating patients haven't seen three cases of Cerebral Palsy. They've seen hundreds. Symptoms of Ataxia can be radically reduced. Many genetic disorders respond well to umbilical cord and cord blood cells.


Understanding China and understanding how to get in to Chinese hospitals can be a challenge. We hope to clear the air and pave the way for you to see and know what's happening there, help increase your knowledge of therapies delivered today and hopefully help you see something you had long ago been told was never possible.

This month we're bringing you several videos covering patients with numerous conditions including rare genetic disorders, Cerebral Palsy, Optic Nerve Hypoplasia, SMA Type II, Septo Optic Dysplasia and Multiple Sclerosis. None of these patients have found cures. But hopefully they have found valuable improvements in their conditions enhancing their quality of life.

We have great hope for the future of stem cell research. But we cannot forget that adult stem cells available today have valuable properties. When faced with a troubled birth, genetic disorder or neurodegenerative condition many doctors will simply say "There's nothing we can do. Go home and learn to live with it." For the patients in these videos, adult stem cell therapy is a tool they've used to learn to live with their conditions.

We are also highlighting blogs and bringing you updated videos from the StemCellsChina Vault newly subtitled and edited.

We're working to make these videos as accessible as possible to the whole world. We will soon have videos available in German, Russian, Chinese, French, Spanish, Portuguese, Romanian and Korean.

Stem cell therapy is symptomatic treatment of severe genetic, neurodegenerative, cardiodegenerative and spinal cord developmental disorders. It is no cure. We thank all the patients who sat for these interviews and we hope their stories help give you a clearer picture of treatment today.

Featured Video

Frank Potts - Charcoat Marie Tooth Disease

Frank Suffers from Charcoat-Marie Tooth syndrome, a genetic disorder. Discovered late in life, here he discusses the disorder and his decision to receive adult stem cell treatment for it.

Najib Puerto-Khalil - Cerebral Palsy

In this video Najib's mother discusses his condition and her family's hopes for his improvements. She discusses fund-raising efforts which made the journey possible and the whole family's experience living in a Chinese hospital for a month.

Kyle and Rayanna - SMA II

Kyle and Rayanna both have Spinal Muscular Atrophy Type II (SMA II). It's a genetic disorder and there are many years between Kyle and Rayanna but together their stories should paint an informative picture for other patients considering if the treatment is right for them.

Manuela and Giulia - Brazilian ONH and SOD Patients

Manuela and Giulia's mothers heard about improvements seen by children with ONH and SOD and decided to give it a try. This interview, shot in Portuguese and subtitled in English, captures the essence of their journeys.



From the StemCellsChina Vault

Here at StemCellsChina we're constantly working to improve the quality of our presentation. Providing video content is expensive time-consuming work and we're grateful for the volunteers and donations that make it possible for us to provide updates.

As part of this effort we're happy to dust off some old videos which may have been difficult to watch at this website previously. We'll be updating Patient Experiences associated with these videos as well.

This month we've collected together the clips for Konnor Boles. Like Braden Frohman this month, Konnor suffered from Spastic Quad Cerebral Palsy. Check out Konnor's Patient Experience here and watch his footage in one complete restored clip here.


Want to join the StemCellsChina Newsletter Mailing List?

Sign up here.

"...like it's your child's first step, first word, first tooth all rolled into one and the same day you win the lottery."

Darren Clarke, describing Dakota's treatment

A Call for Content - If you are a past patient and have video clips you'd like to share with us please let us know! Send us an email here.

We are here to bridge the gap between, researchers, scientists, laboratories, doctors, care providers and those seeking treatment; you. It is our goal to create a smooth road and easy travel between patients and the medical care they need.

If you are a biotech professional and want to keep up with what is going on in China, please visit the ChinaBio website.

Last Updated on Monday, 11 January 2010 11:30
 
A Cure in Sight: The latest on Braden Hart and his father's dedication Print E-mail
Optic Nerve Hypoplasia
Friday, 04 September 2009 13:00

Source: NGNN

It would have been a normal question for a 12-year-old boy riding in the car with his dad. He was at that precarious age near the end of boyhood when rites of passage loom, and Braden Hart knew that he was only three years from being old enough to get a learner’s permit to drive.  And so he asked his dad if he’d be able to drive one day.

Braden’s dad, Brad Hart, could not lie to his son--the son that he loved endlessly, the son who had been diagnosed with optic nerve hypoplasia as an infant, the son who’d been told that while his sight wouldn’t get any worse, it would never be good enough for driving.

And so Brad Hart swallowed the pain lingering with the question, kept his foot on the pedal, and told his son that no, he wouldn’t be able to drive.

But Brad was wrong.

Brad Hart did not yet know about the possibility of stem cell injections in a faraway China hospital or the possibility of a small town coming together to help give his son sight. Those things might have seemed like false hope on this car ride, with Braden asking about the possibility of driving.

The first one to notice Braden’s eye problems in 1995 was his grandmother, who saw the infant’s eyes moving too quickly back and forth. Brad took young Braden to the Anheuser-Busch Eye Institute in St. Louis, where doctors told Brad that there was nothing that could be done for Braden’s blindness. If normal vision is 20/20, the vision in Braden’s right eye was about 20/400. His left eye barely picked up any light.

To complicate things, Braden was also diagnosed with Septo Optic Plasia in 2004. The condition affects his pituitary and would limit his growth if not for the daily shots of HGH that Braden has taken since his diagnosis.

Last Updated on Friday, 04 September 2009 13:22
Read more...
 
Stem cell treatments making a big difference in the life of Janesville teen Print E-mail
Monday, 27 July 2009 11:39

 Source: Gazette Xtra.com

JANESVILLE — You don’t have to ask 16-year-old Kyle Knopes twice if the hospital stay halfway around the world was worth it.

“Definitely” and “absolutely,” Kyle and his mom, Penny, said.

Kyle shows how he’s now able to open his fist and stretch each finger—something he couldn’t do before without help.

Kyle and his family returned earlier this month from China where he received eight stem cell injections they say have improved his quality of life living with Type 2 spinal muscular atrophy.

He noticed the most improvements after his first injection.

“I rolled from my back to my right side, which I haven’t done since I was 6,” he said.

In therapy later that day, he rolled from his back to his left side, too.

Other improvements include more strength in his arms, hands, wrists, head, neck and jaw. More advances can show up for up to nine months, he said.

The added strength, for example, allowed Kyle to carry a bottle of apple juice instead of just the empty cups. It’s also easier to eat, write and do other daily activities.

Kyle is diagnosed with the genetic neuromuscular disorder that affects the part of his nervous system that controls voluntary muscle movement. He has never walked or crawled and has been in a wheelchair since he was 18 months old.

Accompanying Kyle on the 5½-week journey to Qingdao Cheng Yang Peoples Hospital in Qingdao, China, were his mother and brother Andrew.

Typical days for Kyle included two sessions of physical therapy, acupuncture—17 needles at a time—and electric wave therapy.

Last Updated on Tuesday, 28 July 2009 15:06
Read more...
 
Ella Badrudin - CP Stem Cell Patient Print E-mail
Cerebral Palsy
Wednesday, 01 July 2009 17:22

England, Age 2

Primary Condition

Hypoxic Birth - Cerebral Palsy

Watch her new 2009 video here or click on the picture below.

Reason for Coming for Treatment

Ella was born at full term, but she endured a difficult birth during which she required emergency resuscitation. Ella's brain was deprived of oxygen for a short period of time resulting in hypoxic brain injury which later lead to cerebral palsy. During the first few months of her life, she suffered from frequent seizures and had highly fluctuating tone throughout her body. Three months later her seizures largely ceased with only rare relapses. Although she was developmentally delayed, she made steady progress  and began interacting with others. Her parents brought Ella to the best physical therapy centers around the world in an effort to treat her condition. Despite being an inquisitive and happy child, and making some progress with therapy, her parents wanted to give Ella the best chance to overcome her physical limitations. After talking with other parents who had brought their children to China for stem cell treatments, they decided stem cell treatment in China would be the best option for Ella as well.

Treatment

Umbilical Cord Stem Cell Transplants, Cord Serum combined with Acupuncture and Rehabilitation Therapy.
Last Updated on Wednesday, 15 July 2009 14:49
Read more...
 
Russ Kleve - FSHD Muscular Dystophy Print E-mail
Muscular Dystrophy
Wednesday, 01 July 2009 09:14

Russ kindly contributed the following Patient Experience to us and we have published it here.

Russ Kleve

USA, 48

Watch Russ' Video here.

See Russ' Blog here.

Primary Condition

Facioscapulohumeral Muscular Dystrophy (FSHD)


Secondary Condition

Diabetes Type 2
Treated March 15-April 21, 2009

Course of Treatment

4 bags of umbilical cord stem cells via IV; 4 bags of S/C via intramuscular site injections (Round I: 60 injections into my biceps, thighs, and scapula/back; Round II: 24 injections into the front of my thighs and calves + 16 into the back of my legs); 1 Bone Marrow treatment.
Last Updated on Wednesday, 04 November 2009 16:50
Read more...
 
Local Teen Receives Stem Cell Treatment Print E-mail
Saturday, 11 July 2009 19:52

Source: NTV   

 

While the U.S. debates the ethics of stem cell treatment, a Grand Island teen receives adult stem cell treatment in China. NTV brought you the story of Nate Redman before he left.
Four weeks later, he's back.

Wether bouncing a ball, or catching one, Nate Redman can now see and move a little bit better.  Four weeks ago, he had doubts he'd ever see this day.

"I didn't think it would work to be honest, I didn't have much hope."

But after his first of six stem cell treatments, Nate was all smiles.

"It was amazing to see. After the stem cell treatment, the very next day he was better," his mom, Nanette Redman said.

Nate has a genetic disorder, Spinocerebellar Ataxia Type 7 . It hit his body hard this past year, taking his coordination, sight, and speech all downhill.

"I've been dealing with this for a long time. It's a miracle to have hope now to get better," he said.

His miracle was a combination of stem cell injections to his spinal fluid, physical therapy, and
Chinese remedies...like soup, tea, and acupunture.

Last Updated on Monday, 27 July 2009 12:13
Read more...
 
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