Patient Blogs

Ataxia - Al
Ataxia - Alain
Ataxia - Brad
Ataxia - Christine
Ataxia - Crowe
Ataxia - Fernando
Ataxia - James
Ataxia - Jeffrey
Ataxia - Jessica
Ataxia - Martin
Ataxia - Mike
Ataxia - Nate
Ataxia - Nick
Ataxia - Pansy
Ataxia - Rachel
Ataxia - Richard
Ataxia - Terry
Ataxia - Theresa
Autism - Aine
Autism - Julie and Mark
Batten's - Sacha
Bilateral Optic Atrophy - Valerie
Blindness - Kevin
Brain Injury - Adrian
Brain Injury - Dena
Brain Injury - Mackenzie
Brain Injury - Miranda
Brain Injury - Theo
CIDP - Shelly
Cortical Blindness - Bradley
CP - Austin
CP - Braden
CP - Brook
CP - Brooklyn
CP - Caio Penha
CP - Clara
CP - Corey
CP - Daisy
CP - Davis
CP - Dillon
CP - Devina
CP - Drew
CP - Ella
CP - Esa
CP - Gabor
CP - Grace
CP - Jay
CP - Jillian Rose
CP - Joaquim
CP - Joseph
CP - Kaelyn
CP - Keegan
CP - Kendra
CP - Kitty
CP - Konnor
CP - Louise
CP - Luke
CP - Mabel
CP - Mackenzie
CP - Mallory
CP - Maria
CP - Markus
CP - Nathan
CP - Ollie
CP - Ryan
CP - Samuel
CP - Spencer
CP - Vitor
Damaged Pituitary Gland - Mark
Encephalitis - Allie
Epilepsy - Taylor
FA - Joseph
FA - Michelle
GLUT-1 DS - Brook
GLUT DS - Jordan
LCA - Connor
LCA - Leilani
LCA - Moana
LHON - Michell
Lissencephaly - Chandler
Muscular Dystrophy - Russ
MJD - Barbara
MJD - Jaysen
MJD - JC
MS - Becky
MS - Betty
MS - Char
MS - David
MS - Doug
MS - Elizabeth
MS - Jackie
MS - Jason
MS - Joanne
MS - Ken
MS - Kevin
MS - Linda
MS - Lynn
MS - Maureen
MS - Nancy
MS - Nick
MS - Ree
MSA - Clark
MSA-C - Michael
NDD - Alex
ONA - Charles Dockery
ONA - Michael
OND - Ng
ONH - Alonzo
ONH - Bailey
ONH - Braeden
ONH - Brandon
ONH - Cameron
ONH - Cody
ONH - Connor
ONH - Devin
ONH - Eleanor
ONH - Ella
ONH - Glen
ONH - Hallie
ONH - Hayley
ONH - Holly
ONH - Hunter
ONH - Jakob
ONH - Jayden
ONH – Jordyn
ONH - Justin
ONH - Kenidee
ONH - Lawrence
ONH - Laylah
ONH - Lexi
ONH - Lilli
ONH - Lydia
ONH - Macie
ONH - Manuela
ONH - Mia
ONH - Michael
ONH - Nanna
ONH - Paden
ONH - Rylea
ONH - Shanan
ONH - Trinity
ONH - Ty
ONH – Weldon
Optic Neuropathy - Carl
Perisylvian - Rohan
PLS - Mia
ROP - Gabriel
ROP - Gruia
ROP - Guilherme
ROP - Issac
ROP - Shirdesh
ROP - Tatyana
Schizencephaly - Jacob
SCA1 - Theo
SCI - Adam
SCI - Anthony
SCI - Dr. Biggs
SCI - Cheryl
SCI - Chris
SCI - Claire
SCI - David Aldrich
SCI - Diana
SCI - Elizabeth
SCI - Gabi
SCI - Igor
SCI - Jason
SCI - Jennifer
SCI - Josh
SCI - Leslie
SCI - Matt
SCI - Randall
SCI - R. Turner
SCI - Tamara
SCI - Wayne
SCI - Woody
SMA - Brandon
SMA - Daanya
SMA - Justin
SMA - Nirma
SMA - Sierra
SMA2 - Kyle
SMA2 - Rayanna
SOD - Amy
SOD - Ana
SOD - Brayden
SOD - Carlie
SOD - Claire
SOD - Dakota
SOD - Dylan
SOD - Giulia
SOD - Gretta
SOD - Holly
SOD - Jenna
SOD - Josh
SOD - Joshua
SOD - Kacie
SOD - Kade
SOD - Keiran
SOD - London
SOD - Matthew
SOD - Scarlett
SOD - Summer
SOD - Tyler
Spinal AVM - Nick
Spina Bifida - Spencer
Syringomyelia - Stephen
TBI - Michael
TBI - Peppi
TBI - Tori
Transverse Myelitis - Irene
Viral Cerebellitis - Mariannel
West Nile - Rachael
Tiantan - James Ty Haywood Print E-mail
Parkinsons
Wednesday, 09 April 2008 00:36

P A T I E N T   E X P E R I E N C E  -  M S A

NAME: James Ty Haywood

SEX: Male

COUNTRY: USA

AGE:
54

DIAGNOSIS: Parkinson's Syndrome stage II

REASON FOR TREATMENT: James suffers from MSA (Multiple System Atrophy) a type of Parkinsonism that attacks the central nervous system. Shortly after experiencing his first symptoms in April 2004, James began his search for answers and relief. After many months of tests, seeing different specialists and trying different drugs that failed to relieve his symptoms, James was finally diagnosed with MSA in late 2004 and given a prognosis of 6 to 7 years to live.

Treatment:  4 injections of neural stem cells delivered via lumbar puncture (spinal injection) + a daily IV of neurotrophic factors (proteins responsible for cell proliferation).

Beginning of treatment:
October 8, 2007

Condition before the treatment:
See Videos before1 , before2 , before3

From the onset, James' disease progressed rapidly, gradually limiting his overall mobility, and affecting his speech. His legs were stiff, and his four limbs suffered occasional uncontrollable tremors. He also suffered from freeze ups, a common symptom causing the patient to suddenly freeze when initiating a movement.

James motor skills deteriorated significantly, causing him to suffer from many balance related incidents and falls. He moved slowly with a stooped posture and shuffling gait. His arms would not swing by his sides as they normally did. His motor skill problems affected his ability to work with a computer or even write, ultimately forcing him to give up his job. At home, his motor problems limited his ability to perform daily routine activities and tasks like dressing and bathing, turning around in bed, and rising out of a bed or chair.

James also had difficulties with swallowing and his speech. These symptoms, common with MSA, caused him great discomfort and anxiety. When drinking or eating small foods like peanuts and chips, these foods would get stuck in his windpipe and cause him to choke. His speech was slurred, especially under stressful situations, and was getting less and less understandable. He experienced a consistent inability to form words, requiring those around him to constantly request that he repeat conversations. This caused him great stress and further aggravated his symptoms. He became emotionally unstable and depressed.  

Other symptoms James suffered from were a lack of facial expression, drooling, constipation and urinary frequency/urgency.

Condition after treatment:
See Videos after1 , after2 , after3

Few weeks after starting the treatment, James saw noticeable improvements and reported a dramatic reduction in his debilitating symptoms. Gradually, during the 8 weeks of treatment James'overall condition improved significantly. His walking became almost normal, walking much faster and fluidly. His balance improved dramatically and taking the escalator, for example, which he avoided doing in fear of falling, became easy and natural.   

Before the treatment, getting out of bed was a slow and long procedure which James could only manage with great difficulty. Since treatment, James can now get out of bed or a chair easily and without need of aid. He is much less rigid than before and more flexible in his movements. A difficult movement, like squatting down and rising straight up with the knees can now be done easily. He could even jump straight up into the air which was impossible for him to do before.

Before treatment, someone would have to stay with James while he ate, in case he choked while eating. After the treatment, he no longer experienced problems with swallowing. His urination and constipation problem has also much improved. His voice has also become stronger and clearer.

His fine motor skills improved and he could complete tasks that were previously impossible, such as buttoning his shirts, writing and typing on his computer.
James noticed that his general energy increased. He is not as anxious and stressed as before, and he feels that the improvement that he gained brought back his will and determination to fight the disease. "I'm really determined to beat this, and I will. I'm trying to buy enough time to get a cure" said Haywood after returning back home from China.

***
An Article that was published on James Haywood after returning from Beijing to his home in Napa Valley, California, can be found at: http://www.stemcellspuhua.com/n54.html
Last Updated on Saturday, 10 January 2009 19:27
 

Site Search

Patient Experiences

ALS - Mr. Reynolds
ALS - Ms. Brooks
Ataxia - Mr. Arruda
Ataxia - Mr. Blair
Ataxia - Ms. Crowter
Ataxia - Ms. Graf
Ataxia - Ms. Gray
Ataxia - Ms. Jones
Ataxia - Mr. K. Graf
Ataxia - Mr. Knoblauch
Ataxia - Mr Nate
Ataxia - Mr. P. Flynn
Ataxia - Mr. R. Flynn
Ataxia - Mr. T. Graf
Ataxia - Mr. Wallace
Autism - Ms. Maria
Autism - Mr. Pacis
Autism - Mr. Wang
Autism - Mr. Yu
Batten Disease - Mr. Dell'Aringa
Brain Injury - Mr. Ashton
Brain Injury - Mr. Blazevic
Brain Injury - Mr. Cui
Brain injury - Mr. Hayward
Brain Injury - Ms. McAfee
Brain Injury - Mr. Nguyen
Cerebral Palsy - Mr Andrew Ricci
Cerebral Palsy - Mr. Bocskai
Cerebral Palsy - Mr. Boles
Cerebral Palsy - Ms. Caprioru
Cerebral Palsy - Ms. Ella
Cerebral Palsy - Mr Gryphon
Cerebral Palsy - Mr. Lawrence
Cerebral Palsy - Mr. Nicholas
Cerebral Palsy - Mr. Teskey
Cerebral Palsy - Ms. Tahiliani
Cerebral Palsy - Mr. Phang
Cerebral Palsy - Mr. Will
Epilepsy - Ms. Madura
Epilepsy - Ms. Pinczker
Friedriech's Ataxia - Ms. Maher
Friedriech's Ataxia - Mr. Zachary
Glut1- DS - Ms. Jordan
Heart Disease - Mr. Maxwell
Huntington's - Ms. Arroyo
ION - Mr. Stevens
Muscular Dystrophy - Mr Russ
MS - Ms. Chen
MS - Mr. Frey
MS - Ms. Glenn
MS - Ms. Helm
MS - Ms. Kay
MS - Mr. Kenneth
MS - Ms. Sprague
ONH - Ms. Barlett
ONH - Ms Hallie
ONH - Mr. Justin
ONH - Ms.Lilli
ONH - Ms. Manuela
MSA - Mr. Haywood
Parkinson's - Mr. Buckley
Parkinson's - Mr. Brown
Parkinson's - Mr. Budiono
Parkinson's - Ms. Chin
Parkinson's - Mr. Devlin
Parkinson's - Ms. Edwards
Parkinson's - Ms. Kluber
Parkinson's - Ms. Rouen
Parkinson's - Ms. Thomas
Parkinson's - Mr. Woodward
ROP - Shirdesh
ROP - Tatyana
Rett Syndrome - Ms. Laura
SMA - Ms. Gologan
SMA - Mr. Justin
SMA - Ms. Loredana
SOD - Claire
SOD - Ms.Giulia
SOD - Ms.Megan
Spinal Cord Injury - Mr. Aldrich
Spinal Cord Injury - Mr. Allen
Spinal Cord Injury - Mr. Ben
Spinal Cord Injury - Mr. Carson
Spinal Cord Injury - Mr. Iordache
Spinal Cord Injury - Mr. Maricelli
Spinal Cord Injury - Ms. Pai
Spinal Cord Injury - Ms. Radu
Spinal Cord Injury - Mr. Savage
Spinal Cord Injury - Mr. Zuo
Stroke - Ms. Hollis
Stroke - Ms. Jing
Stroke - Mr. Li
Stroke (Child) - Ms. Farkas
Stroke (Infant) - Ms. Grecsó
Stroke (Infant) - Mr. Hildko