Ataxia
Reuben - Non-Hereditary Cerebellar Ataxia Stem Cell Patient Print E-mail
Ataxia
Wednesday, 07 July 2010 16:49

Philippines, 6 years old
Non-Hereditary Cerebellar Ataxia

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Condition Before Treatment

Reuben was the Tan's sixth child. He was born a healthy baby boy, but as he grew older his parent's began to notice that his walking and motor skills were delayed. He was eventually diagnosed with non-hereditary cerebellar ataxia, perhaps the result of an injury in the womb.

As a result of his condition Reuben had very poor balance and was unable to walk without aid. He also had poor motor control and suffered from frequent trembling. Because of these symptoms he had trouble with daily tasks such as sitting up by himself. 


At home in the Philippines, Reuben's parents tried both traditional and alternative treatments for him. But besides physical therapy, they found nothing that helped. His mom, Maricris, tells us that
 "the conventional doctors said that there is nothing they can do anymore. 'Just bring him to a therapist', that's what they told us. So we were having therapy every day. Someone was coming to the house to do exercises with him. 

"We even went to an alternative doctor. Because they said that they suspect lead or mercury or something like that. They gave him so many herbal medicines, which we religiously gave him. I really admire this child because he is very cooperative when it comes to taking medicine and everything. But nothing happened, so we found that it is not the problem."


When Maricris first found out about stem cells as a potential treatment for Reuben, her ethics conflicted with the use of embryonic stem cells on her child. However, further research led her to discover that non-embryonic donated umbilical cord stem cells were available in China which she could safely give her son which did not conflict with her beliefs. 


Treatment in China

Reuben received 6 umbilical cord blood stem cell injections along with physical therapy, occupational therapy, electric wave therapy, and acupuncture.

Condition after treatment

After receiving adult stem cell treatment, Reuben quickly started experiencing changes in his condition. One of the first things his parents noticed was that his shaking was reduced and he was able to easily sit up by himself.

The most dramatic change was the improvement in his walking ability. He is now able to walk with no help for extended periods of time. His mother explains, "now he can walk by himself. You saw him yourself, you saw him a while ago he was walking. Although not yet so stable. He is like a little baby now. You know a little baby from crawling to start standing up and then a few steps. Sometimes he falls, but compared to before he is really better."

Overall, she is convinced that Reuben's stem cell treatment will be a positive for their whole family saying "it will definitely affect us all. Because we really love this boy so much. The whole family, he is the apple of our eye. It will affect us all. When we go back, there are so many friends and family waiting for him to come back home. They are waiting for the good news."



If you would like more information about stem cell therapies available today in China please contact us here.

Last Updated on Wednesday, 07 July 2010 17:29
 
Martin - Ataxia Stem Cell Patient Print E-mail
Ataxia
Tuesday, 20 April 2010 12:50

Martin Bentler

Age 40, U.S.A

Ataxia

Watch his video on Vimeo here

Condition Before Treatment

Martin Was diagnosed with Ataxia in his early twenties after he was having trouble with writing and walking backwards. He had formerly been an accomplished athlete but after his diagnosis all that changed. He explains, 

"I mean I could walk, on level ground. On grounds where you don't have to pick your feet up all the time. But there was no jogging, no hopping or anything like that. I used to do all that stuff when I was in high school"

Ataxia adult stem cell patient, Martin, discusses therapy in China. 


Since being diagnosed, Martin continued to seek treatment. He tried a few medications, but none of them were effective in slowing the progress of ataxia. During the last few years, he was not being given any new treatment options. 

When he heard that his cousin's daughter had come to china to receive stem cell treatment, he contacted patient representatives in China and decided to come as soon as possible.

Treatment in China

Martin received 6 umbilical cord blood stem cell injections. He also received physical therapy, occupational therapy, electric wave therapy, and acupuncture.

Condition After Treatment

Martin was one of the first patients to come to the St. Michael's Hospital in Shanghai for treatment. Though coming from rural Iowa to one of the biggest cities in the world was a bit of a shock, he quickly adjusted. He also found that the side walks in Shanghai were a good indicator of his ability to walk and balance. He explains, 

"All the sidewalks here are pavers, so it is a little bit different than walking on smooth concrete. That would have been a little more difficult before, because it is all uneven, but I have no problem with it now. I can tell just by walking around that I walk more fluidly, and I don't drag my feet which is really nice."

His family back home also noticed some differences,

"People I talk to back home, on the computer, they can already tell there is a noticeable difference in my speech. I'm not trying so hard to say the right things. Making so much of an effort."

He also has advice for anyone else thinking about treatment,

"I would definitely strongly try to persuade them to come to China. I just don't think they are going to have other chances, say with just prescription drugs. Whether it be in the states or wherever. So I would come to China again in a heartbeat."

Last Updated on Friday, 07 May 2010 10:10
 
Brian's Video - Ataxia Patient Experience Print E-mail
Ataxia
Thursday, 04 December 2008 09:21


Brian MacNeill, 38, United Kingdom

Cerebellar Hereditary Ataxia (SCA1)

Check out Brian's video on Vimeo here.

 

Brian in China

 

Reason for Coming for Treatment

Brian and his family are very familiar with Ataxia having watched it claim over 30 lives in the past 150 years. Brian’s immediate family has been particularly hard hit with all four siblings and their mother carrying the hereditary condition. Ataxia is an “orphaned” condition, to use the pharmaceutical industry term for any condition not meriting research. There is no medication for it. But for Brian and his family, Ataxia is a real disease with significant quality-of-life impairments.

With two children of his own—and a 50% chance of passing the condition to them—Brian saw it as his responsibility to do everything he could for them and for future generations with the condition. Brian came to China for adult stem cell transplants in 2006 and again in 2007.

Treatment During First Visit

One IV and three spinal umbilical cord stem cell transplants with nerve growth factor. Acupuncture, wave and physical therapy.
Last Updated on Friday, 08 May 2009 16:35
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Beike - Audrey Jones Print E-mail
Ataxia
Wednesday, 13 February 2008 03:37


NAME: Audrey Jones - The Former Lord Mayor of Manchester

AGE: 75

COUNTRY: Great Britain

DIAGNOSIS: Progressive idiopathic cerebellar syndrome with atrophy

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REASON FOR COMING TO TREATMENT: At the age of 75 Audrey Jones has had a full life that has included many successful undertakings including the partial ownership of one of Manchester’s leading newspapers, authoring a book detailing the experiences of children during World War Two and working as a governmental representative in her home city of Manchester for nearly 30 years. Her hard work and dedication accumulated in her appointment by The Queen of England to the post Lord Mayor of Manchester in 2003. It was during her term as Lord Mayor that Audrey began to realize that something was “not quite right” with her balance and ability to walk. The formerly energetic woman had always lead an extremely active life both at home and in her work as well as in the community was becoming easily tired and having increasing difficulty walking. Though she resolutely continued on with her duties as Lord Mayor, she required much assistance from her two now constant attendants in order to do everyday things, maintain her work load and to simply walk up stairs. It was during her term as Lord Mayor that she was officially diagnosed by a renowned specialist in England with Cerebellar Atrophy who conveyed to her that her symptoms would only continue to worsen through time with the progression of this disorder to being confined to a wheel chair and ultimately end in her death. The specialist also informed Audrey that there were no treatments options available to her. He said to her that her “only hope would be stem cell research but that it would not be available during her life time”. This of course left her in a void of depression and sadness. Not willing to give up so easily her daughter began to research her mother’s condition looking for any viable treatments that might be available outside of England.

Last Updated on Wednesday, 28 July 2010 16:05
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