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China Stem Cell News
Welcome to China Stem Cell News - 2010 Q1.1 인쇄 E-mail
General
목요일, 19 11월 2009 16:47
There are no translations available.

StemCellsChina Updates

"We went to walk and she said she was feeling the "flavor" of the sun, and this greatly moved me... today I am here at this hospital, watching some incredible things that only God could explain."

Mother of Giulia Rodrigues da Silva

StemCellsChina works to connect people all over the world with active stem cell therapy centers in China. While still relatively unknown in the West, adult stem cell therapy--autologous and umbilical cord stem cells--have already seen a long history. Hospitals treating patients haven't seen three cases of Cerebral Palsy. They've seen hundreds. Symptoms of Ataxia can be radically reduced. Many genetic disorders respond well to umbilical cord and cord blood cells.


Understanding China and understanding how to get in to Chinese hospitals can be a challenge. We hope to clear the air and pave the way for you to see and know what's happening there, help increase your knowledge of therapies delivered today and hopefully help you see something you had long ago been told was never possible.

This month we're bringing you several videos covering patients with numerous conditions including rare genetic disorders, Cerebral Palsy, Optic Nerve Hypoplasia, SMA Type II, Septo Optic Dysplasia and Multiple Sclerosis. None of these patients have found cures. But hopefully they have found valuable improvements in their conditions enhancing their quality of life.

We have great hope for the future of stem cell research. But we cannot forget that adult stem cells available today have valuable properties. When faced with a troubled birth, genetic disorder or neurodegenerative condition many doctors will simply say "There's nothing we can do. Go home and learn to live with it." For the patients in these videos, adult stem cell therapy is a tool they've used to learn to live with their conditions.

We are also highlighting blogs and bringing you updated videos from the StemCellsChina Vault newly subtitled and edited.

We're working to make these videos as accessible as possible to the whole world. We will soon have videos available in German, Russian, Chinese, French, Spanish, Portuguese, Romanian and Korean.

Stem cell therapy is symptomatic treatment of severe genetic, neurodegenerative, cardiodegenerative and spinal cord developmental disorders. It is no cure. We thank all the patients who sat for these interviews and we hope their stories help give you a clearer picture of treatment today.

Featured Video

Frank Potts - Charcoat Marie Tooth Disease

Frank Suffers from Charcoat-Marie Tooth syndrome, a genetic disorder. Discovered late in life, here he discusses the disorder and his decision to receive adult stem cell treatment for it.

Najib Puerto-Khalil - Cerebral Palsy

In this video Najib's mother discusses his condition and her family's hopes for his improvements. She discusses fund-raising efforts which made the journey possible and the whole family's experience living in a Chinese hospital for a month.

Kyle and Rayanna - SMA II

Kyle and Rayanna both have Spinal Muscular Atrophy Type II (SMA II). It's a genetic disorder and there are many years between Kyle and Rayanna but together their stories should paint an informative picture for other patients considering if the treatment is right for them.

Manuela and Giulia - Brazilian ONH and SOD Patients

Manuela and Giulia's mothers heard about improvements seen by children with ONH and SOD and decided to give it a try. This interview, shot in Portuguese and subtitled in English, captures the essence of their journeys.



From the StemCellsChina Vault

Here at StemCellsChina we're constantly working to improve the quality of our presentation. Providing video content is expensive time-consuming work and we're grateful for the volunteers and donations that make it possible for us to provide updates.

As part of this effort we're happy to dust off some old videos which may have been difficult to watch at this website previously. We'll be updating Patient Experiences associated with these videos as well.

This month we've collected together the clips for Konnor Boles. Like Braden Frohman this month, Konnor suffered from Spastic Quad Cerebral Palsy. Check out Konnor's Patient Experience here and watch his footage in one complete restored clip here.


Want to join the StemCellsChina Newsletter Mailing List?

Sign up here.

"...like it's your child's first step, first word, first tooth all rolled into one and the same day you win the lottery."

Darren Clarke, describing Dakota's treatment

A Call for Content - If you are a past patient and have video clips you'd like to share with us please let us know! Send us an email here.

We are here to bridge the gap between, researchers, scientists, laboratories, doctors, care providers and those seeking treatment; you. It is our goal to create a smooth road and easy travel between patients and the medical care they need.

If you are a biotech professional and want to keep up with what is going on in China, please visit the ChinaBio website.

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A Cure in Sight: The latest on Braden Hart and his father's dedication 인쇄 E-mail
Optic Nerve Hypoplasia
금요일, 04 9월 2009 13:00
There are no translations available.

Source: NGNN

It would have been a normal question for a 12-year-old boy riding in the car with his dad. He was at that precarious age near the end of boyhood when rites of passage loom, and Braden Hart knew that he was only three years from being old enough to get a learner’s permit to drive.  And so he asked his dad if he’d be able to drive one day.

Braden’s dad, Brad Hart, could not lie to his son--the son that he loved endlessly, the son who had been diagnosed with optic nerve hypoplasia as an infant, the son who’d been told that while his sight wouldn’t get any worse, it would never be good enough for driving.

And so Brad Hart swallowed the pain lingering with the question, kept his foot on the pedal, and told his son that no, he wouldn’t be able to drive.

But Brad was wrong.

Brad Hart did not yet know about the possibility of stem cell injections in a faraway China hospital or the possibility of a small town coming together to help give his son sight. Those things might have seemed like false hope on this car ride, with Braden asking about the possibility of driving.

The first one to notice Braden’s eye problems in 1995 was his grandmother, who saw the infant’s eyes moving too quickly back and forth. Brad took young Braden to the Anheuser-Busch Eye Institute in St. Louis, where doctors told Brad that there was nothing that could be done for Braden’s blindness. If normal vision is 20/20, the vision in Braden’s right eye was about 20/400. His left eye barely picked up any light.

To complicate things, Braden was also diagnosed with Septo Optic Plasia in 2004. The condition affects his pituitary and would limit his growth if not for the daily shots of HGH that Braden has taken since his diagnosis.

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제인스빌 십대의 인생에 큰 변화를 갔다준 줄기 세포 치료 인쇄 E-mail
월요일, 27 7월 2009 11:39
출처 : Gazette Xtra.com

 제인스빌(Janesville) – 16살 카일 놉스(Kyle Knopes)에게 지구 반대편에 있는 병원에서 지낸 가치가 있었는지 두번 물어 보지 않아도 된다. “당연하죠,” “확실하죠” 라고 카일과 그의 어머니 페니(Penny)가 말했다.
 
카일은 예전에 도움 없이는 주먹을 피고 손가락을 움직이는 것을 상상도 못했는데 지금은 자유롭게 할 수 있다는 것을 보여준다.

카일과 그의 가족은 이번달 초 중국에서 8번 줄기세포 주사를 맞고 돌아왔다. 이번 주입으로 그가 제2형 척수근육위축을 지니고 사는 삶에 편리를 가져다 주었다.

그는 첫 주입 이후 가장 많은 개선을 보게 되었다.

“누워서 뒹구는 것을 여섯살 이후 해본적이 없는데 치료후 할 수 있었어요”하며 그가 말했다.

그리고 그 날 치료를 마치고 그는 다시 누워서 뒹굴었다.

그 외에 그의 팔, 손, 손목, 머리, 목, 턱에 힘이 더 세졌고 개선을 보였다. 더 많은 발전이 9개월 동안 더 나타날 것이라고 그가 말했다.

힘의 강도가 추가 되면서 카일은 빈 컵이 아니라 사과 주스 한 병을 들수 있었고 먹기, 쓰기 등 일상 활동이 더 순조러워졌다.

카일은 수의근 움직이는 신경 일부분에 영향을 미치는 유전 신경 근육 질환으로 진단 받았다. 그가 18개월이 된 후, 걷거나 기어 본적이 없이 휠체어에만  앉아있었다.

5주 반 동안 카일을 중국 청도 청양 인민 병원에 동반하는 것은 그의 어머니와 그의 형제 앤드류였다.

카일은 보통 하루에 두차례씩 물리 치료, 침술 – 한번에 17 바늘 사용, 그리고 전파 요법을 받는다.
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엘라 베드루딘 | Ella Badrudin 인쇄 E-mail
Cerebral Palsy
수요일, 01 7월 2009 17:22

국적: 영국 | England
나이: 2
제 1 차 상태: 저산소 출생 - 뇌성 마비
2009년 새로 나온 동영상을 보실려면 아래 그림이나 여기를 클릭하세요.

치료 받는 이유:
엘라는 달이 차서 난 아이지만, 그녀는 출생시 응급 소생이 필요해 어려운 출생을 버텄다. 엘라의 뇌에 산소가 짧은 기간동안 면직되면서 저산소뇌손상을 일으켰고 이것이 뇌성 마비로 이어졌다. 처음 몇 개월 동안, 그녀는 자주 발작을 일으켰고 그녀의 몸 색조는 자주 변동을 했다. 3 개월 후 그녀의 발작은 드물지만 재발을 한 후에야 멈쳤다. 비록 그녀의 발달은 지연되었지만, 그녀는 꾸준히 진전하고 다른 사람들과의 상호 작용을 하기 시작했다. 그녀의 부모님은 최고의 물리치료센터에서 엘라의 상태를 치료하기 위해 노력을 했다. 엘라는 호기심 많고 행복한 아이에다 그녀는 치료로 향상함에도 불구하고, 그녀의 부모는 그녀의 신체적 한계를 극복하기 위해 최선의 기회를주고 싶어했다. 아이들의 줄기세포 치료를 위해 중국에 다녀온 몇 부모들과 얘기를 나눈 후, 그들은 엘라를 위한 최상의 선택이라 생각하고 중국에 줄기 세포 치료를 받으로 가기로 결정했다. 

치료: 탯줄 줄기 세포 이식, 코드 세럼 주입 및 침구와 재활 치료 결합.

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Russ Kleve - FSHD Muscular Dystophy 인쇄 E-mail
Muscular Dystrophy
수요일, 01 7월 2009 09:14



러스씨가 친절하게 환자 체험을 우리에게 기여하여 여기에 게시했습니다.

이름 : 러스 크리브 | Russ Kleve

국적 : 미국 | U.S.A.
나이 : 48

러스의 동영상은 여기서 감상해세요.
 
제 1차 상태 : 안면 견갑 상완근 이영양증 (얼굴어깨위팔근육퇴행위축) (FSHD)

(Video)

제 2 차 상태 : 당뇨병 제 2 형

치료일자 : 2009년 3월 15일 - 2009년 4월 21일


치료 과정 :
정맥주사로 탯줄 줄기세포 4 봉지; 근내주사로 S/C 4봉지 (제 1 회 - 팔뚝, 허벅지, 그리고 견갑골/등에 주사 60번; 제 2 회 - 허벅지와 종아리 앞면 주사 24번 + 다리 뒷면 16번); 골수 치료. 

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지방 청년이 줄기세포 치료를 받다 인쇄 E-mail
토요일, 11 7월 2009 19:52

출처 : NTV

미국이 줄기세포 치료의 대해 논쟁하고 있는 동안, 그랜드 아일랜드(Grand Island) 십대가 중국에서 성체줄기세포 치료를 받았다. NTV는 네이트 레드먼(Nate Redman)이 떠나기 전에 그의 이야기를 방송했었다. 4 , 그가 돌아왔다.

공을 튀기든 잡든, 네이트 레드먼은 지금 볼 있고 조금 수월하게 움직 일 수 있다. 4 그는 이런 날을 볼 수 있을 거라곤 의심 밖에 없었다.

"
전 정말 솔직히 치료가 성공하지 않을 것이라 생각하고 큰 기대를 하지 않았어요.."

하지만 그의 첫 6번의 줄기세포 치료제 다음, 네이트는 온통 미소 뿐이였다.

"
보고 놀랐어요. 줄기세포 치료가 끝난 , 바로 다음날 그는 더 나아졌어요." 그의 어머니인 네네트 레드먼(Nanette Redman)말했다.

네이트는 척수소뇌성 실조증 유형 7 (Spinocerebellar Ataxia Type 7)유전자 장애를 가졌다. 이 실조증은 지난 1년 동안 그의 공동 작용, 시력, 언어능력을 다 쇠퇴시키면서 그의 몸에 타격을 주었다.

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