" Connor is now "looking" at things. It is truly amazing what things he is doing now. He can pick up his toys and play with them. He also gives hugs and kisses. He never did any of this before. "
Surorile Moana si Leilani Faasisila, care aveau probleme legate de vedere, s-au intors din China, unde au facut tratament pentru a-si imbunatati vederea lor - cu rezultate promitatoare.
Fetele lui Quaker Hill, in varsta de sapte si cinci ani, s-au nascut cu Leber’s Congenital Amaurosis - in timp ce acestea erau inca in pantecele mamei lor, retinele lor au fost deja deteriorate din cauza unei lipse de proteine.
Leilani nu are nici o perceptie aprofundate, si poate vedea doar culori care sunt vibrante.
Moana poate vedea numai lumina puternica si umbra.
Singura lor speranta pentru a-si imbunatati vederea lor a fost terapia cu celule stem din China - la un cost de 38.000 dolari.
Cu sprijinul echipei de rugby Hill Rouse Renegades si a Hotelului Ettamogah, comunitatea a ajutat la o strangere de fonduri in Februarie si Martie, iar familia, toti cei sase, au calatorit in China pentru ca fetele sa poata primi tratamentul.
Tratamentul fetelor a constat din trei implanturi intravenoase, trei implanturi in maduva spinarii cu celule stem prelevate din sangele cordonului ombilical, acupunctura, acupresura si electroterapie.
Lachlan has been diagnosed with autism. He goes to a special school in Australia for children with behavioral disabilities. Last year Lachlan received adult stem cells to treat symptoms associated with autism. For a month Lachlan and his mother lived at the Chengyang People's Hospital where he received treatment.
The treatments are not meant to be a cure for autism. Medical science has yet to fully understand the causes of the disorder let alone discover drugs to correct it. Today, treatments seek to improve patients' quality of life as they endure their disability.
Read his full Patient Experience from Qingdao here. Can't see the video? Click here.
“Since my last post my left and right eye are now at around 5 meters!! Big difference from 1 meter??!! I notice a lot more little things like I could see the goal posts at a match last week and every day things.”
We were excited to read today's news from Valerie about her progress since receiving stem cell therapy. Her story of vision loss was scary to say the least. Getting some of it back must be wonderful.
This week we're bringing you a video about an Indonesian patient treated for Spinal Muscular Atrophy III. SMA III is the least aggressive type of SMA but Nirma, at 30, is nearly confined to a wheelchair now. In this short video she talks about her specific condition and the improvements she saw in China receiving adult stem cell therapy. You can also check out our SMA II video following two patients.
Rahman has known he's had a condition for many years. But only in the last couple years as he's pushed for a PhD has the muscle wasting begun to significantly affect all aspects of his life. Rahman has a rare form of Muscular Dystrophy. Check out our new video as he discusses his condtion, how it has affected his life and studies, the options available for him back home and his expectations for the stem cell treatments.
Follow links at Rahman's patient experience to StemCellsChina's interview with him and his website to learn more about him and his condition.
Stem cells have been in the news a lot recently. A US judge has shut down the Federal funding plans for embryonic research. While we at StemCellsChina champion the use of autologous and umbilical cord-derived stem cells we can't help but notice that too many people still lump all stem cells together into one big issue. They're walking in the dark about the "other" stem cell. We'll do what we can to hang a light for the world to see.
Leena Returns to China and Checks Out Shanghai
Following up on a previous video we posted about Leena we thought we'd catch up with her family during their second visit to China. This time they visited the new stem cell clinic in Shanghai's St Michael's Hospital. Leena appears to be responding well to the treatments and we're thrilled to see her continue to make strides. Click on the photo or click here to check out Leena's new video.
Doctors to FDA: You have no jurisdiction over someone's own stem cells.
Autologous stem cells are stem cells you receive from your own body. We all have adult stem cells working for us all the time directing development throughout our bodies. This note in Nature presents the case made by doctors who believe the FDA's rules for drugs do not apply to material from our own bodies. There is a long history of adult stem cell use in medicine. Read up and get informed.
Awareness Event Update
If you missed the August event in Tampa we're sure there will be more around the US. We'll do our best to keep you posted about them. Here's an article from The Sun Newspapers written by their Feeling Fit Publisher describing the event. We hope you can make it to the next one!
Chace Back in Canada
Chace and his family recently returned from Qingdao to Canada. They've kept up their blog sharing with us news of his improvements following his therapy.
